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How do you counsel newly diagnosed patients with ALS on dietary recommendations?

Patients often see a dietician at ALS centers, but what do you discuss with patients before they have a formal consult with a dietician?
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Would you recommend a carbohydrate rich diet for patients with ALS?

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4 Answers
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Neurology · University of Minnesota
Answered on

I counsel all my newly diagnosed ALS patients about the importance of weight maintenance. Weight loss is an established risk factor for accelerated ALS progression according to several studies (Janse van Mantgem et al., PMID 32576612 and Jawaid et al., PMID 20500116). Therefore, we always aim to mai...

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Neurology · Cedars-Sinai Medical Center
Answered on

While I understand that a high-calorie diet may have some positive effects, I have tended to encourage maintaining weight (unless very obese, in which case the obesity will cause problems in breathing, transfers, and care) without promoting any specific diet. I suggest people not worry about "health...

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Neurology · University of Utah
Answered on

All patients see our dietitian every visit at 3-month intervals. The initial focus is on adequate nutrition, especially if a patient is losing weight. We do not recommend specific foods or supplements if they are maintaining weight. If a patient asks about supplements, we review the literature (e.g....

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Neurology · Columbia University Medical Center / New York Presbyterian Hospital
Answered on

Previously, I partnered with our dietician to counsel our patients focusing on safe swallowing and higher caloric intake. Based on the recent study results, we additionally ask the patient's usual intake of carbohydrates, type of food items, frequency, and quantity. I recommend patients increase the...

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