How do you counsel patients with dermatomyositis on sun protection?
We make sure patients know that sun exposure can trigger flares, so we strongly recommend staying out of direct sunlight between 10 AM and 4 PM, using broad spectrum, SPF30+ sunscreen daily even when indoors (as UVA can penetrate through windows), and wearing sun protective clothing (ideally UPF-rated, but anything that provides good coverage works), along with wide-brimmed hats and sunglasses. Some sunscreens come in stick form, making it a little easier to reapply during the day (ideally every...
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In addition to the excellent list by Dr. @Dr. First Last, I add:
Change all indoor lighting to LED bulbs. As discussed by Klein et al., PMID 18992852 we are bombarded by small amounts of significant UV light all day long indoors (small amount at a time but over long lengths of time), and LED gives off much smaller amounts of UV light than fluorescent and incandescent, and halogen bulbs.
I also give them a medical necessity note for protection at work that UV filters be installed if non-LED bulbs a...
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The Myositis Foundation has great information for patients on sun protection.
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